Orkambi Protests, 22nd June 2018, Belfast and London

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Orkambi Protests, 22nd June 2018, Belfast and London (Little Fierce One)
www.youtube.com/watch This video was made to raise awareness about the campaign to make a life saving cystic fibrosis medicine available on the NHS. Please share far and wide and go to a protest in…

https://www.youtube.com/watch?v=oVCZqWu5_Lk

This video was made to raise awareness about the campaign to make a life saving cystic fibrosis medicine available on the NHS. Please share far and wide and go to a protest in Belfast or London on 22nd June if you can! Thanks to everyone who contributed to the video and huge thanks to…

Daily Physio for Cystic Fibrosis

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My friend Jen‘s been blogging and vlogging about cystic fibrosis – which her young son Lorcán has – in order to raise awareness of it and of a promising new treatment, Orkambi, which would very likely dramatically improve the lifespan and health of chidren like Lorcán… were it available on the NHS. For more information, including petitions you can sign, see their blog Little Fierce One.