Tag: cystic fibrosis
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Found GC1BQK0 Pendle Summit
This checkin to GC1BQK0 Pendle Summit reflects a geocaching.com log entry. See more of Dan's cache logs. A very easy find (with spot-on coordinates fed good sky views to ensure a solid lock) for fleeblewidget and I late this morning, after a hot hit satisfying ascent up the Big End. TFTC.
Shortly afterwards we met Steve … -
Look After Lorcán
Dan's friend Jen's two-year-old son Lorcán suffers from cystic fibrosis, and can't get the medicine he needs. Can you help?
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#strawfiechallenge
#strawfiechallenge - 1 minute of simulated breathing difficulty in recognition of sufferers of cystis fibrosis
Today I'm attaching a clothes peg to my nose and breathing through a straw for 60 seconds. As I won't be able to talk while I'm doing this, I'll type an explanation why:
Like most people, I've spent most of … -
Orkambi Protests, 22nd June 2018, Belfast and London
Orkambi Protests, 22nd June 2018, Belfast and London (Little Fierce One) www.youtube.com/watch This video was made to raise awareness about the campaign to make a life saving cystic fibrosis medicine available on the NHS. Please share far and wide and go to a protest in… https://www.youtube.com/watch?v=oVCZqWu5_Lk
This video was made to raise awareness about the campaign … -
Daily Physio for Cystic Fibrosis
Jen & Lorcán (Little Fierce One)
My friend Jen's been blogging and vlogging about cystic fibrosis - which her young son Lorcán has - in order to raise awareness of it and of a promising new treatment, Orkambi, which would very likely dramatically improve the lifespan and health of chidren like Lorcán... were it available …