#strawfiechallenge

#strawfiechallenge – 1 minute of simulated breathing difficulty in recognition of sufferers of cystis fibrosis

Today I’m attaching a clothes peg to my nose and breathing through a straw for 60 seconds. As I won’t be able to talk while I’m doing this, I’ll type an explanation why:

Like most people, I’ve spent most of my life lucky enough to not really know anything about cystic fibrosis. I first really became aware of it when my friend Jen‘s son Lorcán was diagnosed with it (you may remember I shared a video of hers previously).

It’s a lifelong disorder with no known cure.

It’s a genetic disorder, and as many as one in every 25 people carries the gene that can cause it. Inherit two genes and you’re a sufferer. Among other symptoms, it causes frequent lung infections and difficulty breathing.

I’m taking part in the #strawfiechallenge as an exercise in appreciating how difficult it can be to cope with reduced lung function. A new drug, Orkambi, is helping to extend the lives of sufferers in other countries around the world. But it’s not yet available in the UK. :-(

CF sufferers want #OrkambiNow. They need your politicians to act.

Find out how you can help: www.cfsupportgroup.org


This video is also available at:

  • QTube (also available for direct or torrent download)
  • YouTube

Geohashing expedition 2019-01-08 51 -1 (video)

On the morning of my 38th birthday I set out on an expedition to the geohashpoint in my graticule as a diversion from my way to work: read my full hash log for details (or on the geohashing wiki). Inspired by a spot near the hashpoint, I also hid a geocache (“2019-01-08 51 -1, 09:19”, OK049E, GC827X6). You can download my tracklog [GPX] here.

Also available on YouTube and on QTube.

Geohashing near Winchester (2018-08-23 50 -1)

My original plan to divert to the 2018-08-23 51 -1 hashpoint during my planned journey North-to-South along almost the entire length of the 51 -1 graticule was ruined somewhat by the hashpoint turning out be farther North than my starting point! So I changed plans and overshot my destination in order to visit the 50 -1 hashpoint, instead (and find a couple of geocaches on the way). Here’s how that went.

Also available on YouTube and on QTube.